Heal Nick

5/25/2008

Parent Posting

Filed under: — probbins @ 8:10 pm EDT

Nicholashad a second Botox intervention on Monday. His first was in January. It takes 24 to 72 hours to see any effect. After 6 days I haven’t ntoiced anything dramatic but I’ll leave the real evaluation to his physical therapist.

As mentioned in other postings, there are times when Nicholas does something so surprisingly ordinary and seemingly spontaneaous that really encourages us. Today, as we were getting ready to take a trip in the car and he was walking by the stairs, he turned and headed up to his bedroom. He was reminded he was supposed to go to the car and responded he had to get something for his cell phone. OK. We played along and went with him to the bedroom, where he started searching for something. When asked what he was looking for he said that he needed the tunes for his cell phone. Translated he was looking for his Ipod Shuffle to take with him. This turned out to be huge; first because he remembered he had a Shuffle and second knowing he wanted to listen to it while in the car. We have rarely witnessed any recall of this kind in the past.

5/18/2008

Parent Posting

Filed under: — probbins @ 7:34 pm EDT

Nothing extraordinary to report. I’ve started reading WATER FOR ELEPHANTS to Nicholas, which he enjoys and is able to follow with little difficulty. He starts a new PT routine tomorrow and will be participating in a gait & balance class, taught by his physical therapist, each Monday for 5 weeks a the MGH Institute of Health Professions. He did this in 2006 & 7 and made significant improvements. His involvement not only gives the students a great opportunity to gain “hands-on” experiences, he is also receives valuable therapy. He is also scheduled for his 2nd Botox intervention this week to improve his right leg and ankle flexion.

5/11/2008

Parent Posting

Filed under: — probbins @ 5:54 pm EDT

HAPPY MOTHER’S DAY!

Nicholas has his “official” 37th Birthday Party today which was attended by friends & relatives, young, not so and in between. As tends to be the case, pictures speak louder than words. So, take a look at the latest addition to the Photo Gallery.

Equally as important, it’s also Mother’s Day. I doubt most of us are aware of how this tradition originated. Here’s the history:

The United States celebrates Mother’s Day on the second Sunday in May. In the United States, Mother’s Day was loosely inspired by the British day and was imported by social activist Julia Ward Howe after the American Civil War. However, it was intended as a call to unite women against war. In 1870, she wrote the Mother’s Day Proclamation as a call for peace and disarmament. Howe failed in her attempt to get formal recognition of a Mother’s Day for Peace.

Her idea was influenced by Ann Jarvis, a young Appalachian homemaker who, starting in 1858, had attempted to improve sanitation through what she called Mothers’ Work Days. She organized women throughout the Civil War to work for better sanitary conditions for both sides, and in 1868 she began work to reconcile Union and Confederate neighbors.

When Jarvis died in 1905, her daughter, named Anna Jarvis, started the crusade to found a memorial day for women. In 1907, she passed out 500 white carnations at her mother’s church, St. Andrew’s Methodist Episcopal Church in Grafton, West Virginia—one for each mother in the congregation. The first Mother’s Day service was celebrated on 10 May 1908, in the same church, where the elder Ann Jarvis had taught Sunday School. Anna chose Sunday to be Mother’s Day because she intended the day to be commemorated and treated as a Holy Day. Later commercial and other exploitations of the use of Mothers Day infuriated Anna and she made her criticisms explicitly known throughout her time.

Originally the Andrew’s Methodist Episcopal Church, the site of the original Mother’s Day commemoration, where Anna handed out carnations, this building is now the International Mother’s Day Shrine (a National Historic Landmark). From there, the custom caught on—spreading eventually to 46 states. The holiday was declared officially by some states beginning in 1912, beginning with West Virginia. In 1914 President Woodrow Wilson declared the first national Mother’s Day, as a day for American citizens to show the flag in honor of those mothers whose sons had died in war.

Nine years after the first official Mother’s Day, commercialization of the U.S. holiday became so rampant that Anna Jarvis herself became a major opponent of what the holiday had become. Mother’s Day continues to this day to be one of the most commercially successful U.S. occasions. According to the National Restaurant Association, Mother’s Day is now the most popular day of the year to dine out at a restaurant in the United States.

For example, according to IBISWorld, a publisher of business research, Americans will spend approximately $2.6 billion on flowers, $1.53 billion on pampering gifts — like spa treatments — and another $68 million on greeting cards.

Mother’s Day will generate about 7.8% of the US jewelry industry’s annual revenue in 2008. Americans are expected to spend close to $3.51 billion in 2008 on dining out for Mother’s Day, with brunch and dinner being the most popular dining out options.

5/9/2008

Special Greeting

Filed under: — probbins @ 3:12 am EDT

Good Morning Marcia.

My informants at ECC tell me you check-out this website every morning. Hope you are doing as well in your recovery as I am and look forward to seeing you around one of these days.

Nicholas

5/5/2008

nic

Filed under: — grams @ 3:46 am EDT

great reports they keep getting better and better the colorful birthday cake made the 37th extra special…grams

5/4/2008

Parent Posting

Filed under: — probbins @ 6:34 pm EDT

Occasionally the years of dedication to seeing Nicholas reach his recovery potential do pay off. The other day I took a ride to Rockport with him to take a look at the Rockport Lodge, just renovated by a friend. We had the radio on playing a tune I recognized but didn’t know the name or artist. I said to Nicholas it sounded familiar. Without hesitating he replied, “Purple Haze, Jimi Hendrix.", which it was. I asked him if he was guessing, he said no & laughed. Made my day! It’s moments like this that make the entire effort worth while and bring it all into its proper perspective.

37th birthday on May 1st and celebrated by a surprise cake at the Manchester Athletic Club. Check-out the Photo Gallery.

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