Parent Posting
So, it’s 75 in Boston today and, as it should be, Nicholas spent the afternoon outside interacting with family and friends and generally enjoying a great Spring day. Plenty of sun block, except we forgot the back of his hands. It took us awhile to figure this out. We couldn’t figure out why he turned his hands up while resting on the arms of his wheelchair. It appeared he was assuming a quasi-lotus position. It finally dawned on us he was protecting the back of his hands. Once the sun block was applied, he turned his hands over. He’s really beginning to make his feelings known.
The therapies are really beginning to kick-in. He now has pretty much full control of his head and neck, can sit unassisted for 2 or 3 minutes (This is really hard work!), shifts his weight in the wheelchair, does a lot of the work himself transitioning from a supine to sitting to standing when being transferred from bed to wheelchair. He just figured-out how to operate the wheelchair himself and Nicholas being Nicholas pays particular attention to keeping it moving in a straight line…always making minute course corrections. He can also back-up and turn. He decided to spring this bit of skill on us today. Of some concern is he now knows how to unbuckle the seatbelt and can almost pull himself out of the wheelchair. He needs to be watched and this is good! The therapists had him “walking” between parallel bars the other day with his legs bearing most of his weight. It will take some hard work to get the articulation of his joints and muscles working correctly but I don’t think it will be too much longer before he’ll be able to get around for short periods using a walker. His cognitive awareness & skills have increased accordingly. He is getting much better responding with head nodding/shaking for simple yes and no questions and took the first steps toward feeding himself the other day by using a spoon to eat five spoonfuls of organic yogurt. The therapist first tried pudding and custard, which didn’t interest Nicholas at all to no one’s surprise. There’s no doubt his personality and humor are still intact.
The biggest step in the rehab process this week was Nicholas’ weekly evaluation by the therapists who now consider him “responsive”, as he beginning to “interact with his environment”. Last week he was categorized as “minimally responsive”.
The family continues to smile. Peter

We have been so anxious for this report and it is truly heartening. Such wonderful progress and gains !!! We had big smiles reading the report, so we’re sure you really must be grinning. Love to you all. Westy and Julie
Comment by Julie and Westy Adams 4/11/2005 @ 5:32 am EDT